AIDS 2018 March in Amsterdam

AFEW International received the invitation to join AIDS 2018 march in Amsterdam, and we are sharing this message with you. Please fill in the form below in case you are planning to join the march:

Hello everybody,

In a couple of months the International AIDS Conference 2018 will be held in Amsterdam. We are excited and are looking forward to work together with activists all over the world and make this event one to be remembered.

As you might know from previous conferences, traditionally there will be a march or demonstration of HIV and AIDS activists. This year the march will take place just before the official opening of the conference at the RAI Amsterdam Convention Centre in the afternoon of Monday, 23rd of July 2018. With this email we would like to introduce us to you and ask you to join us in the march/demonstration to raise our voices for and with people living with HIV.

We are aware that we might be a little ahead of time. But it gives us together with you more time to activate more people and to organise a good march in cooperation with the local authorities. Please forward this email to more organisations, people, living with HIV or relatives and friends you know and who might like to become part or support the march. 

For some organisational matters we kindly ask you to let us know if you and your organization are interested in updates or possibly want to get  involved. You can do so by filling out an online form:

You will soon hear from us again (if you want).

Kind regards,
Alexander P. &
Hans V.  &
Alexander S.


Do we Treat or Harm: how Ukraine is Fighting against Tuberculosis

Olga Klimenko in the children’s ward of the tuberculosis dispensary. Photos from the personal archive

Author: Yana Kazmyrenko, Ukraine

At the entrance to any public polyclinic in Ukraine, an announcement is greeting a patient: visit a doctor is possible after a fluorography only. The obligatory lungs X-ray maintains a semblance of the fight against tuberculosis. In Ukraine, most of the patients get to know their status very late. The country has not been able to take the tuberculosis epidemic under control for more than twenty years. Ukraine has the world record of multidrug-resistant forms of tuberculosis and is still treating patients, sending them to prolonged isolation in overcrowded dispensaries.

An activist of the All-Ukrainian Association of People who have had tuberculosis ‘Stronger for TB’, Olga Klimenko, was diagnosed with tuberculosis in 2015. By the time of hospitalization, she was sick for at least six months. In 2016, Olga published a book The world inside me. Confession of the tubercular woman in which she described her life experience with the disease.

Now Olga is trying to help patients with this diagnose. On the webpage of her community in Facebook The world inside me, requests appear every day: to transfer money for the purchase of inaccessible drugs, which for the most part are not licensed in Ukraine, to purchase washing machines for tuberculosis dispensaries or diapers for recumbent patients. Last month, Olga was “coaching” 34 patients.

“I do not know when and where I contracted tuberculosis. No one knows. Everyone remembers the last long-lasting flu after which he or she felt weakened and broken down. Ukrainians usually do not go to the doctor, we go to the drug store and buy a full set of antiviral drugs. We remove symptoms, but do not cure diseases,” says Olga.

During the treatment, Olga had good and bad times. The most difficult was the separation from her daughter: the girl was sent to a special boarding school for children who were in contact with infected people, where her homegrown girl spent six months with children from dysfunctional families. Olga still did not forgive doctors who did not tell her that after two weeks from the start of the treatment she was not contagious anymore.

Ukraine is breaking records

Olga’s story is typical for Ukraine where the epidemic of tuberculosis is spreading for several years. More than 30 thousand of Ukrainians are diagnosed with a not active tuberculosis and more than 10 thousand – with an active form. Every day 90 people get their status. These figures are underestimated: according to the World Health Organization (WHO), every fourth patient in the country stays undiagnosed.

Back in 1995, WHO announced that Ukraine has exceeded the epidemic threshold – 50 cases per 100,000 people. Since then, the situation has only worsened – the conflict in the East of the country forced 1.5 million residents of Lugansk and Donetsk regions to resettle. In these regions, there were 15% of Ukrainians who were diagnosed with tuberculosis. Every fifth TB patient is HIV-positive.

Tuberculosis for export

The resettlers are at risk of tuberculosis in Ukraine. Photo by UNIAN

Compared to the other post-Soviet countries, indicators of Ukraine look particularly depressing. If in Ukraine the incidence rate according to the data for 2016 was 67.6 per 100 thousand people, in Belarus it was at the level of 39.9, in Kazakhstan – 52.2, in Poland – 17. The European average is 12 people per 100,000 population.

In the top 20 countries of the world, tuberculosis has already become an exotic disease. The epidemic in Ukraine frightens the neighbors – about 5 million Ukrainians work in the EU countries and Polish media write that a visa-free regime with the EU will allow tuberculosis to migrate to Europe. Warsaw is even discussing the possibility of medical control on the border with Ukraine.

Resistant mycobacteria

Director of the Public Health Center of the Ministry of Health of Ukraine Vladimir Kurpita says that the prevalence of multidrug-resistant tuberculosis (MDR-TB) is the main feature of the Ukrainian epidemic.

Many patients refuse to continue treatment the moment they start feeling better. They do not want to spend at least six months in the dispensary and to be unemployed, staying on the verge of poverty. Due to discontinued treatment the health situation worsens – mycobacteria becomes resistant to drugs. To treat this form, more toxic drugs should be used, the duration of treatment gets longer and it becomes several times more expensive. Now in Ukraine, 85% of the funds allocated for tuberculosis are spent for treatment of multidrug-resistant tuberculosis.

According to Kurpita, treatment of regular tuberculosis lasts six months and costs the state about 30 euros, compared to the treatment of a complicated form of infection, which takes up to 20 months, and the price for that reaches 400 thousand euros. Currently, there are 1.2 thousand cases of such highly resistant bacteria diagnosed in Ukraine. In this sad rating, only India overtakes Ukraine.

Family doctors will start to treat tuberculosis

Experts agree that it is possible to defeat tuberculosis if compulsory hospitalization will be replaced by outpatient treatment. This step may reduce the chance for reinfection in the hospital. Now patients at different stages of recovery are getting treatment in hospital rooms for 5-7 people for years, and they have the risk of catching a nosocomial infection at any time.

A health reform that is currently ongoing in Ukraine, involves the transfer of patients with non-active tuberculosis under the responsibility of family doctors. The last ones are supposed to get extra paid for each of the cured patients.

“The main idea is that doctors will be in closer contact with patients, will know their health history. Responsible people will receive their pills and will lead a familiar lifestyle,” explains Olga Klimenko.

She dreams for three Ukraine-wide days off not because of some celebration but because of a mass medical examination for the all Ukrainians so that people could find out that they have some dangerous disease before it gets to the last stage.

Post-Soviet Countries Need a Single Document on HIV in the Field of Migration

Presidium of the seminar

Author: Marina Maksimova, Kazakhstan

In the post-Soviet countries, there is no single document that would regulate the issues of HIV prevention, diagnosis, and treatment for migrants as well as their legal status. Migrant workers do not get the adequate services in the countries where they work which inevitably leads to the decline of their health status and to the growth of the HIV epidemic in the region. This message was the main one in the discussion at the sub-regional technical seminar in Astana, Kazakhstan on February 19-20, 2018. The event was organized by the United Nations Population Fund (UNFPA) in cooperation with the Joint United Nations Program on HIV/AIDS (UNAIDS) with the support of the Ministry of Foreign Affairs of the Kingdom of the Netherlands.

HIV rates continue to grow in EECA only

The seminar became a platform for a dialogue between representatives of governments, international and non-governmental public organizations from Kazakhstan, Kyrgyzstan, Tajikistan, Turkmenistan, Russia, Uzbekistan and interested regional partners.

Extraordinary and Plenipotentiary Ambassador of the Kingdom of the Netherlands to the Republic of Kazakhstan, the Kyrgyz Republic and the Republic of Tajikistan Dirk Jan Kop

“The incidence of HIV is predominantly stabilizing around the world. Even if the indicators are very high, they do not grow. However, in Central Asia and Eastern Europe (EECA), HIV incidence is increasing. HIV is not a problem of marginalized groups only. HIV is closer than you think. It must and can be stopped, also it must be stopped in Central Asia,” says Extraordinary and Plenipotentiary Ambassador of the Kingdom of the Netherlands in the Republic of Kazakhstan, the Kyrgyz Republic and the Republic of Tajikistan Dirk Jan Kop.

This concern was supported by all the participants after considering the situation, strategies used in different countries, best practices, main priorities for the effective response to the HIV epidemic among labor migrants.

The way HIV affects labor migration

Labor migration and HIV prevalence are increasing. This already became a stable trend of the region. There are numerous examples where migrant workers with HIV have no access to antiretroviral therapy in the places of temporary residence. Legislation of some countries provides for the deportation of foreign citizens with HIV. Migrant workers often experience stigma and discrimination.

UNFPA Regional Director for EECA countries Alanna Armitage

“Recent epidemiological surveillance data in Uzbekistan and Tajikistan have shown that the prevalence of HIV among people returning from labor migration is 2-4 times higher than among the general population. Migrant workers from Central Asian countries face serious challenges in access to the full information and adequate HIV prevention, care and treatment services,” said UNFPA Regional Director for EECA countries Alanna Armitage.

Experts unanimously admit that better access to HIV prevention and treatment in Central Asian countries is the key to elimination of the HIV epidemic.

Aid for migrants with HIV started in Kazakhstan

In 2018, HIV-positive migrants in Kazakhstan begin to receive aid with the support of the Global Fund to Fight AIDS, Tuberculosis and Malaria. Treatment and laboratory testing will be provided to 150 people.

“Kazakhstan is a country with a low HIV prevalence. Last year, more than 16,000 foreigners were tested for HIV. 0.2% HIV cases were found. If we take the vulnerable groups only, this figure among foreigners will reach nine percent,” says the vice-minister of health of the Republic of Kazakhstan Lyazzat Aktayeva.

In a country where migrants with HIV do not have to be deported, 61 thousand people were tested. This is a heavy burden on the national budget. So far, migrant workers have no legal status and opportunities to receive even a minimal medical service are very limited. Therefore, we need new strategies for working with this category of the population and not only within a single country.

First shot in the battle

The participants called the seminar the first shot in the battle for an overall strategy for the prevention, diagnosis, and treatment of migrants in the post-Soviet space. The creation of a special structure located in Russia as the biggest receiving country of migrant workers was approved to regulate this process.

Recommendations of the seminar will be presented for discussions at the forthcoming international conferences on HIV/AIDS, which will take place this year: The VI International AIDS Conference for Eastern Europe and Central Asia (April, Moscow) and 22nd International AIDS Conference AIDS 2018 (July, Amsterdam).

Happy with HIV in Tajikistan

Tajik wedding. Source:

Author: Nargis Hamrabaeva, Tajikistan

A Tadjik girl Nozanin was diagnosed with HIV after her husband-migrant returned home a few years ago. As the man has found it out, he walked out on her… Now the 40-year-old woman is happily married again.

Everything was like a fairy tale

“It happened unexpectedly, like in a fairy tale. Once I was taking care of the household, when my friend, who liked me, called. He said that he would come with a mullah (a clergyman conducting the wedding ceremony according to the Muslim canons – editor’s note) and some of our colleagues. They really came. After the religious wedding ceremony, we went to his parents,” Nozanin is saying.

This friend turned out to be a client of the Republican Network of Women Living with HIV, where Nozanin has been working. He was also HIV positive. He wanted to marry a woman with the same status and Nozanin somehow even tried to find him a suitable candidate. It turned out that the man was already in love with her…

“I never thought that I could ever get married again, especially having HIV status,” she says.

Today Nozanin considers herself to be a happy woman. Together with her husband they have a lot of plans and ideas, and they also want to give birth to a healthy child. Many couples living with HIV have the same desire.

A marriage contract is not needed

700 people in Tajikistan receive support from the Republican Network of Women Living with HIV. For the most part, these are young people who want to start a happy family.

Tahmina Haydarova, the head of the network, says that young men between the ages of 18 and 35 come to them searching for a soulmate with the same HIV status. Often these are labor migrants, former drug users or prisoners who have never been married before. Brides are usually those who have already been married. These women contracted the virus from a migrant husband or partner who used drugs.

Such brides do not ask to sign a marriage contract; they do not ask for an apartment or dacha. The most important thing for them is the timely use of antiretroviral therapy by their future spouse and a healthy life.

HIV is not a barrier

Each year the Republican Network of Women Living with HIV helps at least 5-6 young HIV positive people to find their spouses. Takhmina Haydarova is telling about 10 couples who decided to start a family with the fact that one of the spouses is HIV positive.

“If a person loves and accepts you for who you are, then HIV is not an obstacle to start a family. Today antiretroviral drugs that block the HIV are available. A person living with HIV with a suppressed viral load can start a family, give birth to a healthy child, live a full and happy life the way our clients do,” she says.

According to the Republican AIDS Center, the total number of HIV positive citizens in Tajikistan has reached 10 thousand people, one third of them are women. Since 2004, women with HIV have given birth to 1,000 children, 600 of these children have no HIV.

Shrinking Civil Society Space Hinders NGO Activities in EECA

The results of the assessment proved to be the basis for rewarding discussions during AFEW Regional autumn school in Almaty, Kazakhstan last year where the first findings were presented

Author: Aïcha Chaghouani, The Netherlands

Different trends of more restrictive legislation hinder the development of a healthy, independent and diverse civil society in Eastern Europe and Central Asia (EECA). Shrinking civil society space in the EECA countries is making the work of many non-governmental organisations more difficult.

NGOs play a crucial role in the development of effective HIV/AIDS responses. Non-governmental organisations meaningfully involve community key population groups for a better understanding of their needs. The experts are saying that the limited space that NGOs are allowed to maneuver in, is threatening the effectiveness of national and regional policies to contain and stop the growth of the HIV epidemic in the region.

AFEW’s assessment of the situation

Many NGOs in the EECA region, especially those working with key populations and in the field of harm reduction, are currently facing significant challenges. International donors are withdrawing from the region while most local governments are unwilling and/or failing to take over. The withdrawal of funds together with the shrinking civil society space are threatening the investments made and progresses achieved in the last decades in the field of HIV/AIDS.

AFEW International’s experts Janine Wildschut and Magdalena Dabkowska conducted a mixed-methods research to explore the process of shrinking civil society space in the EECA countries, how this affects NGOs and how they are coping with it. With this research, AFEW has gained more insights and learned how NGOs are currently dealing with those challenges. The research is part of AFEW’s regional approach within Bridging the Gaps: health and rights of key populations project.

Coping strategies and regional exchange

The ultimate aim of the research was to assess the coping strategies in a context of shrinking space of civil society in EECA.

“I believe that these coping strategies are vital in the current circumstances and demonstrate the big resilience of the communities and NGOs working with key populations,” says AFEW’s director of programmes Janine Wildschut.

The research was conducted in Kazakhstan, Kyrgyzstan, Poland, Tajikistan, Russia and Uzbekistan.  This mixed-method research consisted of a general primary assessment of the whole region, semi-structured interviews with NGOs and donors, and a survey.

AFEW’s experts believe that by mapping different strategies AFEW is able to facilitate a regional exchange of success and failure stories in which NGOs can learn from each other’s experiences. The identification of different strategies helps organizations to develop more comprehensive coping mechanisms in the current contexts.

“We hope to raise more awareness with donors about the situation of NGOs in the shrinking space of civil society, and will offer coping tools to NGOs,” says Janine Wildschut.

Fight, hide or unite

The outcomes of the research identified three main resilience strategies NGOs adopted in order to overcome the challenges. They are: fight – opposing the authorities, hide – opposing, allying or neutral but out of sight and silent, and unite – allying with the authorities. All interviewed NGOs had different reasons to choose one of these three paths.

AFEW International’s experts Janine Wildschut and Magdalena Dabkowska conducted a mixed-methods research to explore the process of shrinking civil society space in the EECA countries, how this affects NGOs and how they are coping with it

“We want to be more diplomatic. If you are being too much of an activist, you can also just break your organization,” an NGO employee from Tajikistan said.

For some organizations, it was possible to create alliances with the local or national authorities and still continue their work while for others, creating these alliances meant stopping or changing part of their core activities.

“We believe that it is actually ethically wrong to be in alliance with this government. We also do not try to be invisible for them. We do not do anything illegal so we do not hide anything,” a Russian NGO employee said. “There is no law we are violating so there is nothing to hide. If they want to change or stop us we just go to court. We have a lot of strategic activities including cases against the government.”

Further discussion 

Which out of ‘fight, hide or unite’ positions is the most suitable for an NGO, depends on the characteristics of the organization, the context it is operating in and the beliefs of its employees.

“The different paths identified by the assessment could serve as a fruitful basis for further discussion and to build strategic plans on how to deal in such situations. AFEW can facilitate a valuable exchange of best-practices between NGOs. Besides, the discussion can serve as a way to grow awareness and understanding about why a certain NGO takes a specific position, which can prevent undesired conflicts between civil society organisations themselves,” says Janine Wildschut from AFEW International.

The results of the assessment proved to be the basis for rewarding discussions during AFEW Regional autumn school in Almaty, Kazakhstan last year where the first findings were presented. In spring of 2018, the official report will be published and will be available online.

Bridging the Gaps in Clinical Guideline to Care in Pregnancy for Women Using Psychoactive Substances

All the regions of Kyrgyzstan already received the developed clinical guideline

The estimate number of people who use injected drugs (PWID) in Kyrgyzstan is about 25,000 people. Many of these people are women. Such is the data from the research that was conducted within the framework of the Global Fund’s grant in 2013.

Applying recommendations in practice

In 2016, Public Fund (PF) Asteria, a community based organisation that protects rights of women who use drugs in Kyrgyzstan, applied to AFEW-Kyrgyzstan seeking for a help in developing a clinical guideline to care in pregnancy for women who use drugs. Within the framework of the project Bridging the Gaps: health and rights for key populations, AFEW-Kyrgyzstan decided to support this initiative as there were no modern standards for working with women who use drugs in the country before. A working group that included an expert in narcology, an obstetrician-gynecologist, an expert in evidence-based medicine, and a representative of the community of women who use drugs was created. In January 2017, the clinical guideline “Care in pregnancy, childbirth and the puerperium for women who use psychoactive substances” was approved by the order of the Ministry of Health and became mandatory for doctors’ use.

“When the guideline was approved, we realized that it is not enough to simply distribute it among the doctors. It was necessary to organize a comprehensive training for the family doctors, obstetrician-gynecologists and other specialists so that they could not only apply the developed recommendations in practice, but also share their experience with their colleagues,” said Chinara Imankulova, project manager of the Bridging the Gaps: health and rights of key populations at AFEW-Kyrgyzstan.

In April 2017, trainings were organized for the teachers of Kyrgyz State Medical Institute for postgraduate students. The manuals for teachers with presentations have been developed so that in the future trained teachers could deliver reliable information to the course participants. This approach gives an opportunity to train all healthcare professionals in the country and provides them with an access to the protocol.

In August 2017, trainings were offered to obstetrician-gynecologists of the centers of family medicine and obstetrical institutions. During the trainings, specialists got acquainted with the latest research in this field, studied the peculiarities of pregnancy, prenatal and postnatal period of women, who use drugs, as well as ways to avoid or minimize the risks of drug exposure to women and children.

“Two or three years ago, when our pregnant women who use drugs visited doctors, they were afraid that doctors would force them to have an abortion. In September 2017, our client Victoria, who at that time was on methadone therapy, visited the obstetrician-gynecologist. Victoria gave birth to a healthy girl, and doctors treated Victoria and her child very well. Moreover, the doctor even helped Victoria to get methadone so she could spend enough time in the hospital for rehabilitation after the childbirth,” said Tatiana Musagalieva, a representative of PF Asteria.

Women should not be discriminated

During the trainings, 100 specialists who are working in the republic of Kyrgyzstan were trained. Doctors from the regional centers were also invited for the training. It is very important to provide access to quality medical services for women who use drugs in the rural areas. Doctors also learned to get rid of their stigma towards women who use drugs and always treat them with respect. A class on stigma and discrimination was taught by women from the community of drug users. They told the participants of the training their stories, talked about how difficult it was when doctors refused to treat them or insulted them. This part was useful in reducing stigma and discrimination among doctors, in showing them that women who use drugs are just like the others.

“Before the training I met several pregnant women who use drugs. To be honest, I was not sure that they could give birth to healthy children. Having received the clinical protocol, and with the knowledge I have got in the training, I realized that these women should not be discriminated. I learned about scientific recommendations for conducting pregnancy in the situations that cannot do harm to either mother or child. This helped me a lot,” said the participant of the training, obstetrician-gynecologist Kaliyeva Burul.

All the regions of the republic already received the developed clinical guideline. Doctors who have been trained, share their experiences with their colleagues and help women who use drugs to safely plan their pregnancies and give births to healthy children. AFEW-Kyrgyzstan continues to monitor the work of specialists who have been trained, and monitors if all health specialists have access to the guideline. In the future, AFEW-Kyrgyzstan will continue to work on improving the quality of life of people who use drugs, and will monitor the usage of this protocol by doctors.

Spices – New Threat for the Tajik Youth

Photo source:

Author: Nargis Hamrabaeva, Tajikistan

While several years ago Tajikistan was concerned with young people being into opiates and stronger synthetic drugs, today there are concerns about the new-generation drugs – so-called spices.

Spicy naswar

The official reports of law enforcement agencies fail to contain any data on the seizure of spices. However, a quick survey among the young people showed that those smoking blends have long been popular in the country.

Spices are the smoking blends, which contain dry herbs and roots. The dried components themselves are not dangerous, but to make the smokers feel a more intense euphoria, the producers add cannabinoids, which are strong narcotic substances. 

“For what I know, earlier spices were distributed in the nightclubs, but now they are mostly sold in the internet and through the grapevine. I also heard that sometimes naswar – the type of smokeless tobacco typical for Central Asia, containing tobacco and alkali (hydrated lime), which is popular among many local people – is processed in the same way as the spices,” says Aziz, a student from Dushanbe.

“Rich kids” having fun

Our anonymous respondent who has 20 years of experience working at law enforcement agencies said that it would not be right to say that young people in Tajikistan are addicted to spices, but this threat should not be disregarded.

“Yes, spices can be easily accessed, but their price is higher than the price of marijuana which young people have traditionally been smoking and continue smoking now. After the heroin “rush” at the turn of the century, many people who use drugs have been massively switching to marijuana and opiates. They strongly believe that marijuana is not more harmful than cigarettes,” he says.

According to him, spices are mostly used in nightclubs by those, who have enough money for it – the so-called “rich kids.”

“They think that spices do not cause addiction and that they can quit using them whenever they want as opposed to opiates and heroin,” says the law enforcer.

Spices do not have the euphoric effects they used to

However, Dr. Mahmadrahim Malakhov who studied the sociocultural aspects of the substance use in Tajikistan, says that the dependence develops much quicker when using spices than when using natural marijuana.

Meanwhile, the exact number of people who use drugs in Tajikistan is not known. Doctors say that few people who use drugs seek medical assistance when they want to quit. They are the ones who are included in the official statistics, which shows that there are a little more than 7 thousand people who use drugs in the country.

Last year, Tajik law enforcers seized about 4.5 tons of narcotic drugs, which is 29.8% more than the year before.

“In particular, 110 kg of heroin, 1.2 tons of raw opium, 2.4 tons of hashish and 742 kg of cannabis drugs were seized. The offences of 52 criminal groups consisting of 115 individuals were investigated and terminated, including five organized transnational groups,” said Murtazo Khaidarzoda, Deputy Head of the Drug Control Agency of the Republic of Tajikistan at the press conference.

About Us with Us Only: Russian Specialists to Attend AIDS 2018

Author: Anastasiya Petrova, Russia

February 5th 2018 was the deadline for submission of abstracts for the 22nd International AIDS Conference (AIDS 2018). One of the key issues during AIDS 2018 will be the discussion of the response to the HIV epidemic in Eastern Europe and Central Asia (EECA) countries. Below you can see the expectations from experts and representatives from Russian NGOs who have submitted their applications for the Conference.

Yevgeniy Pisemsky

Yevgeniy Pisemsky, HIV and LGBT activist, Head of Organisation PHOENIX PLUS, Person of the Year according to Winq magazine

About the organisation

Our organisation has been active for 11 years now. The main area of activity of Phoenix Plus is support, care and prevention for MSM in relation to HIV. We also support expanding of service centres and fulfillment of human rights.

What the AIDS Conference means for me

In general, I have a positive history with AIDS Conferences. I have visited four. When I came to my first conference in Thailand, I saw a tremendous community of professionals, however, I did not feel myself part of their camp. At that time, the AIDS Conference stimulated my ambitions and I made a resolution to move forward and get something done. So we did – the conference in Mexico City was opened by the fellows from my organisation. This was such an honour! I sat there, in the middle of the conference hall, and cried remembering how it all started.

At the conference in Vienna, I met Elton John AIDS Foundation representative for the first time. Seven years passed and we are still working together. They are our main partners. This is also a result of such conferences. A conference for me is most importantly a possibility to start new acquaintances, form joint plans, and only then acquire knowledge about new technologies and innovations.

My expectations from AIDS 2018

It is very important that at the conference in Amsterdam an attempt to focus attention on EECA region, where HIV situation is worse than in Africa will be made. I would like to share success stories about what we did in Russia on self-testing and learn something new from others. I have prepared an abstract and hope to deliver an oral presentation. We will try to communicate that there are achievements in Russia as well.

Aleksey Mikhailov

Aleksey Mikhailov, Monitoring Division Manager at the International Treatment Preparedness Coalition in Eastern Europe and Central Asia, Patient Control Movement activist

About the organisation

Since 2010, we have been conducting monitoring of state procurement of ARV medications. At that time interruptions in the supply of HIV treatment medications began, and we tried to understand why that was happening. Following analysis of state procurement, we realized where interruptions come from and undertook attempts to change the situation.

What the AIDS Conference means for me

I have never been to AIDS Conferences before, this one will be my first. Since the situation with AIDS in the EECA region is currently one of the most challenging epidemiological situations in the world, the AIDS Conference is a great opportunity to put problems of the region into focus. At the same time, it is also an opportunity to discover world trends and implement them in the Russian Federation. This is probably more related to prevention, as our country has its own way of optimizing treatment.

My expectations from AIDS 2018

It is my hope that the organisers will place greater emphasis on what is going on in Russia, Ukraine and other EECA countries. Today we stand at the threshold of a revolution in treatment. Soon we will have prolonged-release medication forms. Development of enhanced dolutegravir, which can be taken once a month, is in progress. It would be vital to learn about similar research, which is for sure to be presented at the AIDS Conference.

Irina Maslova

Irina Maslova, Leader of Silver Rose – Sex Workers’ Rights Movement, CEO of Astra Charitable Women’s Foundation

About the organisation

My official position is Chief Executive Officer of Astra Foundation, where we deal with HIV prevention among women and access to HIV related services. From this position, I am able to communicate with the government from the public healthcare perspective. At the same time, I lead Silver Rose – the movement of sex workers and their supporters, which is not registered but is fighting violence and HIV spread within this vulnerable group. In the past three years, we have done a lot to reverse article 6.11 that criminalizes sex work and to improve the situation for sex workers in our country.

What the AIDS Conference means for me

AIDS Conference for me is a possibility to meet new people. It is vital for experienced specialists to be able to pass their best practices on to those who follow. We have submitted two abstracts to this Conference. The first one is based on the research conducted jointly with Trans-regional NGO Positive Dialogue and AFEW International and related to violence as an obstacle to access to prevention programmes. The second one is on analysis of a project within the framework of co-funding to the main programme of the Global Fund to Fight AIDS, Tuberculosis and Malaria. The uniqueness of this project is that we have managed to reach the 90/90/90 goal. It would be great to share that experience.

My expectations from AIDS 2018

Today we need to talk about bringing the main donors back to Russia. The Global Fund is shutting down its operation in the country, and the government does not finance work with key groups and will not do so while sex work remains to be criminalized. Until the government starts working with this target group, sexual transmission rate will keep growing. In order for the projects for key groups to be effective, we need continuity and that is impossible without funding.

Maria Yakovleva

Maria Yakovleva, HIV activist, Director of Candle Charitable Foundation

About the organisation

We are a self-organization of people living with HIV established in 2004. We provide direct services to vulnerable groups, however currently this activity is being carried out outside projects. We provide equal counselling, social support, as well as first-aid kit and a hotline. The Foundation also provides technical assistance for the Global Fund Coordination Board Secretariat.

What the AIDS Conference means for me

I attended the previous AIDS Conference in South Africa and that was my first International Conference. I was lost at first and only towards the end gained an understanding of how all the resources could be utilized. During the first several days I just walked around open-mouthed at the amount of communication, new information and acquaintances with representatives from organisations around the world. During the previous conference I got acquainted with professionals in AIDS services – representatives of influential organisations in our domain. I really want to go to AIDS2018. The possibility of sharing the information about what is going on in Russia is also very vital. I believe that speaking about your position is also a way of impacting the situation in the country.

My expectations from AIDS 2018

The focus of the upcoming AIDS Conference is EECA region, so the problems to be addressed there will be much closer to us. I hope there will be donors interested in projects in our region. We are also eager to find ground for dialogue with decision-makers.

AFEW is Looking for a Board Member on a Voluntary Basis

AFEW International is seeking applications for the position of Board Member to attend Board meetings and provide constructive input by offering specific expertise on the subjects of AFEW International’s activities.

The Board consists of a Chairperson, Vice-Chairperson, a Treasurer and four other members. Board members are not paid any form of honorarium and thus work on a voluntary basis. Board members are elected for a three-year period which is renewable for one additional term.

The Board approves the organisation’s strategy, annual workplan and the budget, as well as advising the Managing Board on strategic issues, including fundraising. The Board meets at least four times a year (three times by teleconference and 1 time during a face to face meeting) and provides technical and strategic guidance on overall objectives, major programs, partnerships, and on monitoring & evaluation. AFEW International fully complies with the code of good practice for charitable organisations in the Netherlands; the Code Wijffels. The Board is charged with overseeing the overall operation of the organization in order to ensure good standards of transparency and accountability.

About AFEW International

AFEW International is an international network of civil society organisations that is dedicated to improving the health of key populations. AFEW International is fundamentally a humanitarian organization contributing to the development of just, compassionate, open and democratic societies, firmly based on the principles of social justice, which affirms the dignity of each human being and emphasizes the need for tolerance and co-operation.

With a focus on Eastern Europe and Central Asia (EECA), AFEW International strives to promote health and increase access to prevention, treatment and care for public health concerns such as HIV, TB, viral hepatitis, and sexual and reproductive health and rights.


Board meetings – Attend Board meetings and provide constructive input to the agenda items with active participation.

Expertise – Offer her/his specific expertise in the development and implementation of AFEW International’s activities.

Funding – Provide new insights and play a role in the fundraising strategy; help looking for funding opportunities and liaise with possible donors.

Ambassador – Act as an ambassador for AFEW International and advocate of its mission at events, conferences, network meetings etc.


  • Experts in HIV/AIDS, viral hepatitis, TB and harm reduction.
  • Member from the communities AFEW works with, i.e. people who use drugs, sex workers, men who have sex with men, and prisoners from Eastern Europe and Central Asia. With a preference of a representative from the people who use drugs community.
  • Have a track record relevant to AFEW International’s work and client groups.
  • No conflict of interest, i.e. not belonging to a structure or organization that is funded by AFEW International or with which AFEW International has a financial relationship AFEW during their term of office.
  • Previous experience highly desirable.
  • Fluent in English (written and spoken). Russian is appreciated.

Time commitment

  • Attend a minimum of one all-day board meeting currently held in Amsterdam, and at least three telephone conferences per year.
  • Willing to serve at least one three-year term.
  • Willing to invest some time on a case-by-case basis in between Board meetings on general and specific matters.


Please send your CV (no more than 5 pages) and a letter of motivation before 15 March 2018 to AFEW’s Executive Director Anke van Dam at

HIV Risks Grow in Kazakhstan

The number of new HIV cases in Kazakhstan is still growing

Author: Marina Maximova, Kazakhstan

In Kazakhstan, the key alarming trend of the recent years is the growing sexual transmission of HIV. Before, most people in Kazakhstan contracted HIV when sharing injecting equipment, but now most infections are transmitted through sexual contacts.

A commonplace story

Zhaniya (the name is changed) learned about her positive HIV status when she got pregnant and went to the maternity clinic for the medical check-up. She got tested and could not believe her eyes when she saw the test result as she never used drugs and her husband was her first and only man. Repeated testing confirmed the positive result. The woman was afraid to tell her husband and family about her status, feeling scared, ashamed, hurt and confused. She could not remain silent either as any news are spread quickly in her village, let alone bad news. The conversation with her husband made it all clear.

“He confessed that he used to inject drugs. It was long ago, when he was still very young. Now he is sorry about that and wants to have a family and children. My husband also got tested for HIV and his result was positive too. He did not know about his disease and did not want to infect me. Now the main thing is for our baby to be born healthy. Doctors say that it is possible,” says Zhaniya.

In Kazakhstan, 99% of pregnant women living with HIV give birth to healthy children. These women often give birth to two or even three children. In the recent decade, the rate of mother-to-child transmission of HIV dropped four times.

Taking into the account the achievements of the national AIDS service, the stories of Zhaniya and other women living with HIV sound commonplace. The face of the epidemic is becoming more and more female. If earlier mostly men got infected with HIV, now the gender proportion looks more equal. The statistics is illustrated by the following trend: most men rarely go to clinics or make appointments with doctors. Women take more care of their health in general, while pregnant women twice get tested for HIV free of charge.

No sexual education in schools

Natalia Rudokvas, Director of the Answer Charitable Foundation

Another problem contributing to the increased risks of HIV is lack of relevant educational programs in schools and colleges. High school and college students have no access to the information about the routes of HIV transmission and ways to protect themselves at special classes or lectures. There are no guidelines or instructions for educators on this topic. In families, where the topic of sex is a taboo due to the peculiarities of local mentality, children fail to get any information or advice from their parents.

“When our activists make attempts to offer school lectures on the safer sex – we are told we cannot do it. For some reason, promotion of condoms and other contraceptives is considered equal to… debauchery. People blame us, saying that this is what our presentations cause,” tells Natalia Rudokvas, Director of the Answer Charitable Foundation from Ust-Kamenogorsk. She is puzzled with such attitude and hopes that this crucial topic will be discussed at the upcoming 22nd International AIDS Conference AIDS 2018.

Lack of any systematic sexuality education in past years loudly echoes today. Natalia says that people over 30 years of age more and more often seek counselling at their charitable foundation. While young people injecting drugs regularly get tested for HIV and fall under control of the health professionals, older people with “forgotten” histories of drug use stay in the shadow.

The epidemic is growing older

Baurzhan Bayserkin, General Director of the Republican AIDS Centre at the Ministry of Health of Kazakhstan

Several years ago, mostly young people aged 20-29 got infected with HIV in Kazakhstan. Now the age threshold went up to 30-39 years old. Most people got infected twelve or more months ago, and only 10% of the patients were infected within the recent nine months.

“The data received became the ground to carry out an additional epidemiological survey to determine the network of contacts and expand the list of potential risks of infection. High proportion of people who got infected long time ago demonstrates that people have low concerns about contracting HIV. The new approach shows the real picture of the morbidity and allows evaluating the efficiency of prevention measures,” sums up Baurzhan Bayserkin, General Director of the Republican AIDS Centre at the Ministry of Health of Kazakhstan.

The number of new HIV cases in Kazakhstan is still growing. As of today, there are about 29,000 of Kazakhstani and about 2,000 of foreign citizens living with HIV in Kazakhstan.